MRF’s CURE OM Initiative Welcomes Jacqueline Kraska
October 6, 2016One of the central challenges with studying a rare disease is that there is little information available. Ocular melanoma (OM) is a rare disease, with only about 2,000 individuals diagnosed each year. To-date it has been difficult for the medical commu …
Honoring President Carter, A 2016 Courage Award Winner
October 5, 2016The MRF honors President Jimmy Carter with a Courage Award in recognition of his fight against melanoma and the awareness he raised by sharing his experience with the public. Last year’s announcement by President Jimmy Carter that he had melanoma …
Meet Dr. David Abrutyn, Melanoma Survivor and MRF Awardee
September 27, 2016Twelve years ago, Dr. David Abrutyn's wife, Danielle, noticed a mole on the back of his leg. He was initially assured by a dermatologist that it was benign and could just be watched. However, ten months later, while he was doing his sports medicine …
In Kristin’s Words: A Patient Perspective on Research
September 20, 2016Ocular melanoma patient and advocate Kristin Nocco recently participated in a first-of-its-kind patient review process to determine the recipient of OM research funding. My name is Kristin Nocco. I live in Philadelphia, was diagnosed with uveal melanom …
Summer’s Story: The Need for an OM Patient Registry
August 24, 2016Summer shares her ocular melanoma story and why she joined the #CUREOM Unite! campaign to support the development of a national ocular melanoma patient registry. Dear OM Community, Week after week, month after month, the reported cases of ocular …
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