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Patient Education and Engagement Officer
The Patient Engagement and Education Officer (Officer) is a patient-centered role that will strategically educate, support and empower the melanoma community so that they are able to make informed decisions from prevention to survivorship. The Officer is responsible for relationship building with melanoma patients in the cutaneous and rare subtype (ocular, pediatric, mucosal, acral) space to understand their educational and support needs and collaboratively develop, update and create programming to meet their needs. The Officer will communicate across the Foundation’s programmatic areas to ensure alignment with the Foundation’s strategic plan and objectives respective to education and support. The Officer will engage with melanoma key opinion leaders and patients in multiple disciplines (e.g. dermatology, epidemiology, oncology, surgery, and radiation therapy) to review MRF-developed educational content and programming to ensure both clinical accuracy and that the patient-voice is represented. Ensuring that all educational materials are up-to-date, timely and relevant while working with the marketing and communications team to develop a strategic communications process to meet objectives and education goals.
In addition, the Officer will work closely with the programmatic team to ensure that educational content is balanced, accurate and included across the program areas of research, advocacy, rare melanomas and development. The Officer will work with corporate partners and convey the strategic objectives of the education program, work on annual proposals, present updates at annual meetings and provide post-funding metrics reports as appropriate. This position will report to the CEO and will manage a team of three.
Duties and Responsibilities:
- Lead strategic education efforts in prevention, awareness, early detection and treatment of melanoma
- Create new educational materials in collaboration with the Programs team and feedback from the patient community
- Develop and work collaboratively and cross-departmentally with programmatic colleagues on the further development of the key initiatives related but not limited to Survivorship, Prevention, Rare Subtypes and SunAWARE
- Develop patient surveys and focus groups to determine educational, engagement and support needs and gaps
- Develop a database of patients to work closely with on educational programming across the melanoma disease areas and develop strategic opportunities for engagement across the Foundation
- Develop an annual strategic plan for educational and support programming with programmatic stakeholders to include cutaneous and rare subtypes
- Oversee content development, patient/professional focus group testing of educational materials and concepts
- Develop the educational messaging around public awareness and prevention campaigns and work with the Communications Department and other departments as needed
- Strategize with the broader program and communications team on newsworthy educational and clinical items to promote and share with the wider melanoma community.
- Participate in white paper development or posters related to educational programming
- Manage key vendors related to educational material development
- Staff the board Prevention Committee
- Engage and respond to patient and caregiver communications and triage as needed
- Ensure educational material integrity and ensure all web and print materials are up-to-date, accurate, and accessible to the melanoma community
- Develop a quality improvement process for engagement and educational programming of the Foundation
- Support and oversee measurement and evaluation of educational deliverables, including outcome and impact metrics
- Maintain and grow the Education Institute coursework by developing new courses and expanding upon the Certified Melanoma Educator Course, including CME opportunities
- Engage with the development team and industry partners on education needs and findings including but not limited to advisory boards, surveys, needs assessments and better understanding the patient journey
- Develop and manage Education Department budget(s)
- Provide stewardship and progress reports to the development team based on industry partner funding
- Other responsibilities, as needed
Science Research and Grant Manager
This position is responsible for managing the science research and peer-reviewed research grant programs.
The Science Research Manager (Manager) must participate in, be knowledgeable about, generate a calendar of, and support the MRF staff/CEO/Board on the broad research agenda which includes: grants, scientific workshops gap areas and their associated output and scientific advisory meetings so that the program functions seamlessly with education, advocacy, development and communications divisions. The Manager works closely with the Science Officer, Scientific Advisory Committee and Board Subcommittee on Science Research to develop, advance and communicate the MRF’s portfolio which includes scientific workshops that address gap areas, resultant white papers, relevant new initiatives and return on investments (ROI). The Manager will attend national scientific meetings (ASCO, AACR, SMR and SITC) as needed and participate in the programmatic meetings that work across the MRF to ensure a cohesive program and develop scientific aspects of the Education, Advocacy, Communication and Development programs. The Manager will interface with top melanoma clinician-scientists, advocates and multisector partners including societies, government and pharma/biotech.
Duties and Responsibilities:
- Manage the grant platform (Proposal Central)
- Serve as first point of contact for grant applicants and recipients
- Draft RFPs in conjunction with the Scientific Advisory Committee (SAC) and Grant Scientific Research Officer (SRO)
- Maintain a master calendar of deadlines and deliverables
- Maintain a library of grant support documents
- Maintain grant compliance including facilitate grant contracts and agreements; tracking signature pages/ scientific progress reports/ financial disbursements
- Prepare reports and provide information for the website, Board, newsletters and pamphlets
- Provide annual reports to the Development Team for donor-directed grant outcomes
- Develop compelling analyses, assessing ROIs and identifying new opportunities within a larger national landscape and consistent with MRF’s mission
- Ensure acknowledgment of funders
- Solicit advocate reviewers to participate in the annual grant process
- Work with the Science Officer to meet or exceed annual strategic plan goals
- Attend in-person and virtual research events for both the MRF and national organizations as needed
- Participate in the creation, planning, and implementation of new and existing projects
- Collaborate with the Science Officer and Advisory Committees to plan scientific workshops/meetings, includes drafting agendas, speaker selection, logistics support, outreach and minute taking.
- Grow the content on the research portion of the MRF website in conjunction with the Science Officer and Communications team
- Work with the Communications team to communicate and expand the visibility of the MRF research portfolio
- Identify new promotional materials that would highlight the research program, as well as ensure existing materials are accurate
- Initiate and manage surveys as needed and generating reports for internal and external circulation
- Maintain and build relationships with the melanoma science community and multisector research partners
- Attend and actively contribute to internal MRF program and strategy meetings
- Provide general administrative support to the Research team as needed
The MRF is looking for bright, enthusiastic interns who have a desire to learn more about melanoma and/or the nonprofit world. Opportunities are available year-round, and may include positions in Education, Events or Development/Fundraising. For more information, please email [email protected].