News & Press


Finn’s Story: A Families Story on Fighting Pediatric Melanoma

September 18, 2020

Guest blog from Daphne Kiernan, mother of pediatric melanoma warrior Finn.  Finn is the youngest of our five children. In July 2018, shortly after his 2nd birthday, we noticed a small red spot on his left hand. We thought it looked like a bug bite. Dur …



Novartis Know Now: Knowing Her BRAF Status was Jordan’s “First Ray of Hope”

September 15, 2020

Meet Jordan Ezekiel – a melanoma survivor who was able to benefit from early testing for the BRAF gene mutation. Learn more about Jordan’s incredible journey with melanoma and why it was important for her to Know Now and get tested for the BRAF gene mu …



Sibling Feelings on Pediatric Melanoma

September 14, 2020

Guest blogs from Dominic and Patrick Little, brothers of pediatric melanoma warrior Dylan.  Written by Dominic Little, age 12 My brother Dylan was born with a rare skin condition called giant congenital melanocytic nevus. It worries me and my moms beca …



Dylan’s Story: Living with Pediatric Melanoma

September 14, 2020

Guest blog from Kara Little, mother of pediatric melanoma warrior Dylan.  As I sit here and watch my 8-year-old son Dylan practice baseball, I’m reminded that at one point I wasn’t sure we’d be here doing this. Dylan was born with a rare condition call …



Landon’s Story: Living with Childhood Cancer

September 3, 2020

Guest blog post by Landon Agosta, a pediatric melanoma survivor:  My name is Landon Agosta and I am from Marine City, MI. I have four siblings, two older and two younger. Some of my favorite things are baseball, basketball, football, tennis and volleyb …