According to Healthy People 2020, inadequate health insurance coverage is one of the largest barriers to health care access, and the unequal distribution of coverage contributes to disparities in health. Out-of-pocket medical care costs may lead individuals to delay or forgo needed care (such as doctor visits, dental care, and medications), and medical debt is common among both insured and uninsured individuals. Vulnerable populations are particularly at risk for insufficient health insurance coverage; people with lower incomes are often uninsured and minorities account for over half of the uninsured population.

The MRF works on the state and federal levels to protect and expand access to care for melanoma patients and its rare subtypes, ocular mucosal and pediatric. 


Hundreds of thousands of Americans with melanoma rely on both Medicare and Medicaid to help cover the costs of their patient care. Despite this, there are several issues facing these entitlement programs that require attention.


Medicare is a federal insurance program that primarily serves older Americans above the age of 65, in addition to younger individuals with disabilities and patients on dialysis. It consists of Original Medicare, Medicare Advantage, and Medicare Part-D. Original Medicare includes Medicare Part A and Part B, which assist with coverage of inpatient hospital expenses (including care in a skilled nursing facility, hospice care, and some home health care) and outpatient medical expenses (including certain medical supplies and preventative services), respectively. Medicare recipients pay deductibles and small monthly premiums for non-hospital costs. Medicare Part-D helps cover out-of-pocket prescription drug costs. Medicare Part-C is the Medicare Advantage Plan, which offers an alternate way to receiving Part A and Part B coverage, in addition to prescription drug coverage offered under Part D. Several different Advantage plans exist, and prices vary depending on the plan’s network of coverage.


Medicaid is a state-run assistance program that assists with medical cost coverage for low-income Americans of every age. Typically, Medicaid recipients pay no out-of-pocket costs for medical expenses, although small co-payments are sometimes required.

Medicare and Medicaid are important because they help insure society’s most vulnerable. The MRF encourages advocates to take action by joining the MRF in working to improve Medicare and Medicaid services for the millions of Americans with melanoma and other life-threatening diseases.



Pre-Existing Conditions

The term “pre-existing condition” describes a health condition that existed prior to an individual’s enrollment in a health insurance plan. This includes conditions like diabetes, lupus, sleep apnea, epilepsy, COPD, and cancers like melanoma.

Prior to the passage of the Affordable Care Act, an insurance company could review insurance applications and determine whether to offer coverage at inflated rates or deny coverage altogether for Americans with pre-existing conditions.

According to the Centers for Medicare & Medicaid Services, 50 to 129 million non-elderly Americans have some type of pre-existing condition. Affordable healthcare for these Americans will be in jeopardy if the Affordable Care Act is struck down in the Supreme Court. Patients currently dealing with the constant stress of expensive medical bills for melanoma treatment may be denied insurance coverage in the middle of a pandemic by private insurers because of factors outside of their control.

The Affordable Care Act has cut the uninsured rate by almost half, dramatically reduced racial and socioeconomic disparities in healthcare access, ensured out-of-pocket cost protections, and expanded Medicaid. It has kept small business insurance premiums low during a time of economic crisis. And crucially, it has served the melanoma patient community by protecting American’s with pre-existing conditions and allowing them more affordable healthcare.




Clinical Trials

Clinical trials are an important option in the treatment plans of thousands of Americans facing life-threatening diseases. In addition to being the best clinical option for many, clinical trials collect valuable data in the development of therapeutics that can be used to improve patient care for people with cancers like melanoma, among other illnesses.

Despite the advantages of clinical trials to both patient care and the medical community, access to these trials is limited. Medicaid recipients are the only insured group of people with no coverage of routine costs associated with clinical trials. As a result, hundreds of thousands of Americans can’t afford to even consider clinical trials as a possibility in their treatment plan.

  • Roughly 75 million low and modest-income Americans are insured by Medicaid, which remains the only major insurance assistance program without a federal mandate to cover routine costs associated with clinical trials
  • Routine costs, as defined in the bill, include non-experimental costs including physician visits and laboratory tests. Under S. 4742/H.R. 913, the cost of the investigational therapeutic would still be covered by the sponsor of the clinical trial
  • Studies have shown that no significant Medicaid expansion would be required on the state level to cover these routine costs. These costs would normally be covered in a non-clinical trial setting
  • Medicaid recipients include people of minority groups and diverse ethnic backgrounds. Diversity is crucial to ensure that data collected in clinical trials is valid and generalizable