CURE Ocular Melanoma (CURE OM)
Ocular melanoma is a form of melanoma that develops in the eye. It is the most common eye cancer in adults and the second most common type of melanoma. Approximately 2,000 Americans are diagnosed with ocular melanoma each year, and 50 percent of these cases spread to other parts of the body. When this occurs, it is most often fatal. More information about this type of melanoma is available in our OM Fact Sheet.
Founded in 2011, CURE OM (the Community United for Research and Education of Ocular Melanoma) is the MRF’s initiative to increase awareness, education, and research funding for ocular melanoma, while improving the lives of people affected by this disease. The CURE OM initiative excels because of the hard work and dedication of its Patient and Scientific Steering Committees and the generosity of our community. Show your support with a tax-deductible donation to the MRF’s CURE OM initiative today!
CURE OM Research
The MRF’s CURE OM initiative is leading the ocular melanoma (OM) field forward. We are committed to accelerating the development of effective treatments and, ultimately, a cure for this disease. Our scientific initiative includes research grants, a patient registry, and biannual international scientific meetings. These efforts ensure continued collaboration, support and coordination to move OM research forward.
To date, the MRF has funded 13 uveal melanoma grants totaling $1,562,250. To learn about upcoming CURE OM research opportunities, search our Research Grants page. CURE OM, as part of its CURE OM Unite! Campaign, has spearheaded the incorporation of the patient/caregiver voice into its grant program. Many of these practices are now being incorporated into the main MRF grant program.
CURE OM is working to develop a national patient-reported registry to support research advancement in ocular melanoma under the guidance of its Registry Steering Committee. It will inform patient-centered research initiatives focused on policy, patient preferences and standards of care. In addition to collecting invaluable disease data, the registry will support the collaboration of patients, caregivers, clinicians, researchers, and the pharmaceutical industry to find a cure together. The 2016 #CUREOM Unite! campaign supported the initial development and framework of the registry.
CURE OM Scientific Meetings
CURE OM hosts regular global science meetings to facilitate interdisciplinary and innovative collaboration focused on finding effective treatments and, ultimately, a cure for ocular melanoma. To date, CURE OM has held 13 such scientific meetings. Each meeting includes a diverse group of speakers and participants from around the world. To learn more about upcoming CURE OM scientific meetings, search our Scientific Meetings page.
CURE OM Education
CURE OM Patient & Caregiver Meetings
The 9th Annual Eyes on a Cure: Patient & Caregiver Symposium will be in Fall 2020 – stay tuned for registration and hotel details coming soon!
Each year, the MRF’s CURE OM initiative hosts the Eyes on a Cure: Patient & Caregiver Symposium, bringing together ocular melanoma patients, survivors and caregivers to learn about the latest advances in OM research and treatment. In addition to a full scientific agenda featuring internationally renowned researchers, physicians and OM experts, starting in 2018 this meeting also began featuring a wellness track of activities. like art therapy, family communication workshops, yoga and more.
CURE OM’s education program includes a variety of online educational and supportive resources for ocular melanoma patients and the people who support them, including webinars, support groups and a treatment center finder.
CURE OM Awareness
The mission of CURE OM is to support research and accelerate the development of effective treatments and ultimately, a cure for ocular melanoma through innovative strategies including international and interdisciplinary collaborations; to improve the lives of people affected by ocular melanoma by creating systems and programs to provide education and support; and to advocate for the ocular melanoma community. To learn more about OM activities, read our quarterly e-newsletter focused on ocular melanoma – Eye on OM.