End of Year Patient Story: Neil Corman

“In December 2016, just before Christmas, my world shifted during a routine eye exam. Twenty years had passed since my last one, and I had noticed a black spot in my left eye’s vision. After a few tests, I was informed by the doctor I had a partially detached retina and was referred to a specialist. I arrived at my appointment, and as soon as I met with the doctor, he wasted no time in delivering the news. Within just 10 seconds, he informed me that it wasn’t a detached retina, but rather ocular melanoma (OM), a type of eye cancer. While breaking this news to me, he assured me that their practice had a specialist in OM, who I met with later that day.

What was OM? Could I have prevented it with sunglasses or was it due to an old eye injury? My mind was reeling with questions as I fought back tears. At my third eye appointment within six hours, I was starting to become an expert of eye drops and having the pressure taken. In shock, I found myself starting to walk miles to my home. This may have been the best thing I could do as I let my thoughts gather.

It’s almost six years since my treatment and keeping a watchful eye. When I was diagnosed, I had many questions. Some I found answers to after the diagnosis, while others I continue to learn about. To support research, the MRF has established the VISION Registry, which gathers demographic information for researchers and doctors, aiming to speed up advancements toward a cure.

Now I am an advocate. In the last six years, I’ve actively participated in the CURE OM Patient & Caregiver Symposium, where I had the chance to listen to leading researchers and physicians who share a common goal of advancing treatment options. As I explore additional avenues to amplify my voice, I recently took part in the MRF’s Advocacy Summit and Hill Day in Washington DC this year. This incredible experience allowed me to engage with policy directors representing my legislators, advocating for patient-focused legislation and increased funding for all forms of melanoma.

These past few years have profoundly shifted my perspective, compelling me to embrace life’s experiences in the present and the future. Ocular melanoma hasn’t extinguished my passion for photography or travel; rather, it’s served as a reminder of their significance in my life, allowing me to keep living and cherishing these pursuits.”