Patients & Caregivers

COVID-19 and Melanoma

Thank you to our Silver Level Sponsors, Merck and Pfizer, for their support in helping us better understand the impact of the COVID-19   pandemic on U.S. melanoma patients.

                                                                                      Merck

For Patients: Helpful Links, Resources and Cancer-Specific Info

We know it can be difficult to find reliable and reputable information during this confusing time. Below is a list of resources and information specific to COVID-19, cancer, support, treatment and clinical trials. We are in constant communication with melanoma experts and our partners across the nation and recently co-signed seven letters of support calling for increased action by multiple agencies of government. We will do our best to update this list regularly.

Government Agencies

Centers for Disease Control (CDC): Are You at a Higher Risk of Severe Illness

World Health Organization (WHO): Rolling Updates on Coronavirus Disease

Food and Drug Administration (FDA): Guidance for Conducting Clinical Trials, Resources for Cancer Patients and Advocates, Resources for Patients and COVID-19 FAQs

American Association for Cancer Research (AACR): Patient Advocacy Resources to Combat COVID-19

Cancer & Scientific Agencies

Cancer.net: Coronavirus 2019: What People with Cancer Need to Know

American Society of Clinical Oncology (ASCO): Mitigating the Spread of COVID-19 and Its Impact on Cancer and COVID-19 Patient Care Information

Cure: Four Things Patients with Cancer Should Know

NCCN Journal: Managing Cancer Care During the COVID-19 Pandemic

Pharmaceutical & Advocacy Partners

Bristol Myers Squibb: BMS Responds to COVID-19

BMS & Patient Advocate Foundation: Emergency Food Assistance

Support Resources

Office of Civil Rights at Health & Human Services: Emergency Triage Letter to OCR

Cancer Support Communities (CSC): What Cancer Patients, Survivors and Caregivers Need to Know About the Coronavirus

National Institutes of Health (NIH): Emotional Wellness Toolkit

For Providers: Helpful Links, Resources and Cancer-Specific Info

Below is a list of resources and information specific to COVID-19 and managing your practice. We are in constant communication with melanoma experts and our partners across the nation. We will do our best to update this list regularly.

American Society of Clinical Oncology (ASCO)

COVID-19 Provider & Practice Information

American Academy of Dermatology Association (AADA)

Managing Your Practice Through the COVID-19 Outbreak

National Comprehensive Cancer Network

Managing Cancer Care During the COVID-19 Pandemic

Oncology Journal

Anti-IL6 Agents Suggested by SITC to Treat Patients with COVID-19

Society for Immunotherapy for Cancer

Implications for Patient Management and Considerations for Basic and Translational Research

Dear MRF community,

As our country continues to adjust to precautions enacted in response to the COVID-19 virus, I wanted to update you on how the Melanoma Research Foundation (MRF) will ensure our work continues with as little disruption as possible. I also wanted to share some patient and caregiver resources you may find helpful. We want to encourage the melanoma community to stay involved, remain engaged and help us continue to move towards a cure for melanoma.

Following the recommendations of local and national health authorities, the MRF team is currently working remotely. However, operations have continued without interruption and our community can expect the same support resources, educational information and advocacy opportunities as before – with new resources on the way!

In accordance with Centers for Disease Control and Prevention (CDC) guidance, in-person events planned for April and May have been rescheduled. Please note the following changes and update your calendars accordingly. Unless noted, all venues will remain the same.

Galas:

For any questions about the MRF Gala program, please email galas@melanoma.org.

Miles for Melanoma:

For any questions about the Miles for Melanoma program, please email milesformelanoma@melanoma.org.

Symposia:

  • The CURE OM Symposium will now be held in Fall 2020 with a new date confirmed in the near future.
  • The Columbus, OH Patient Symposium will be postponed with a new date confirmed in the near future.
  • The Philadelphia, PA Patient Symposium is cancelled and will return in 2021.
  • The Chapel Hill, NC Patient Symposium is cancelled and will return in 2021.
  • The Los Angeles Patient Symposium is cancelled and will return in 2021.
  • All other symposia will proceed as scheduled.

For questions about upcoming patient symposia or other educational programs, please email education@melanoma.org.

What you can do now:

Even as we practice social distancing, there are still many ways to get involved, stay connected and access the resources you may find helpful in the coming days.

Patient and Caregiver Support Resources:

  • Find daily updates on coronavirus precautions and special considerations for people with cancer or other underlying health conditions from our partners at the American Society of Clinical Oncology (ASCO).
  • If financial resources are a concern, explore the many financial assistance programs that are available to melanoma patients and caregivers.
  • Need to talk? Connect with others on the MRF Patient Forum, speak with professional counselors at the Cancer Support Community or find one-on-one support with Imerman Angels. If you have a specific, medically based question about a melanoma diagnosis or treatment, email the MRF’s Ask a Nurse program at askanurse@melanoma.org. This resource is available 24/7, and you can expect a personalized response in 72 hours or less.

Stay involved:

  • The MRF Education Institute is where up-to-date webinars, courses and recordings on melanoma prevention, diagnosis and treatment can be found. Educational materials can also be downloaded and shared electronically to ensure you always have access to the information you need.
  • View over a dozen on-demand webinars on topics including treatment side effects, genetic mutations and genomic testing, melanoma brain metastases and more. View animated patient videos, take an online course or even become a Certified Melanoma Educator.
  • Take action! Laws and policies that affect the melanoma community are currently being debated everywhere from city councils to the halls of Congress. The MRF recently joined a coalition of hundreds of national partners as co-signers on seven letters of support calling for greater action by multiple government agencies. Follow some of the current legislation we’re tracking and contact your lawmakers to urge their support.
  • Host a CommUNITY Fundraiser to increase awareness and raise life-saving funds. Get creative and host an online experience or share your story as a Facebook Fundraiser. The MRF can also provide toolkits and checklists to start planning now for an in-person event later this year. Need some inspiration? Check out 9-year-old Bryson’s penny drive or hit the trails with stage 4 melanoma survivor Fred as he races to fund a cure with Team Melanoma.

What comes next?

The entire MRF team continues to closely monitor the evolving situation and we will follow the recommendations of public health officials to best protect the health of our community and the general public. If further schedule adjustments or adaptations become necessary, we will share that information immediately. The safety and well-being of our community, staff, partners and volunteers will always be of the utmost importance.

While daily life may look significantly different in the days ahead, together we will navigate our way back to “normal.” At the MRF, we are inspired daily by the strength of this community and the ways that you find to support one another.

Please continue to take care of yourselves and your loved ones, and don’t hesitate to reach out if the MRF can be of any assistance.

Sincerely,

 

 

Kyleigh LiPira, MBA
CEO, Melanoma Research Foundation

Content last updated: August 26, 2020