Patients & Caregivers
COVID-19 and Melanoma
Thank you to our Silver Level Sponsors, Merck and Pfizer, for their support in helping us better understand the impact of the COVID-19 pandemic on U.S. melanoma patients.
For Patients: Helpful Links, Resources and Cancer-Specific Info
We know it can be difficult to find reliable and reputable information during this confusing time. Below is a list of resources and information specific to COVID-19, cancer, support, treatment and clinical trials. We are in constant communication with melanoma experts and our partners across the nation and recently co-signed seven letters of support calling for increased action by multiple agencies of government. We will do our best to update this list regularly.
NEW: Centers for Disease Control Interim Public Health Recommendations for Fully Vaccinated People, When You’ve Been Fully Vaccinated, COVID-19 Vaccines for Children and Teens, NPR: COVID-19 Trials Underway for Kids 5 and Younger
National Cancer Institute (NCI): COVID-19 Vaccines May Be Less Effective in Some People with Cancer, Coronavirus Vaccines and People with Cancer: A Q&A with Dr. Steven Pergam
National Institutes of Health (NIH): Immune Response to Vaccination After COVID-19, Lasting Immunity Found After Recovery from COVID-19, Most COVID-19 Hospitalizations Due to Four Conditions, Final Report Confirms Remdesivir Benefits for COVID-19
Society for Immunotherapy of Cancer (SITC): SITC Statement of SARA-CoV-2 Vaccination and Cancer Immunotherapy
World Health Organization (WHO): Rolling Updates on Coronavirus Disease
Food and Drug Administration (FDA): Guidance for Conducting Clinical Trials, Resources for Cancer Patients and Advocates, Resources for Patients, Coronavirus (COVID-19) Update: October 28, 2020 and COVID-19 FAQs
Food and Drug Administration (FDA): Coronavirus (COVID-19) Update: FDA Authorizes Monoclonal Antibodies for Treatment of COVID-19
Fred Hutch: How COVID-19 Affects Cancer Patients
Cancer & Scientific Agencies
American Association for Cancer Research (AACR): Letter to President Biden and Leaders of State Health Departments: Prioritizing COVID-19 Vaccines for Patients with Cancer
American Association for Cancer Research (AACR): Patient Advocacy Resources to Combat COVID-19
American Society of Clinical Oncology (ASCO): Mitigating the Spread of COVID-19 and Its Impact on Cancer and COVID-19 Patient Care Information
NCCN Journal: Managing Cancer Care During the COVID-19 Pandemic
Pharmaceutical & Advocacy Partners
Bristol Myers Squibb: BMS Responds to COVID-19 (Extended through June 2021)
BMS & Patient Advocate Foundation: Emergency Food Assistance
Office of Civil Rights at Health & Human Services: Emergency Triage Letter to OCR
Cancer Support Communities (CSC): What Cancer Patients, Survivors and Caregivers Need to Know About the Coronavirus
National Institutes of Health (NIH): Emotional Wellness Toolkit
For Providers: Helpful Links, Resources and Cancer-Specific Info
Below is a list of resources and information specific to COVID-19 and managing your practice. We are in constant communication with melanoma experts and our partners across the nation. We will do our best to update this list regularly.
American Society of Clinical Oncology (ASCO)
American Academy of Dermatology Association (AADA)
National Comprehensive Cancer Network
Society for Immunotherapy for Cancer
Dear MRF community,
As our country continues to adjust to precautions enacted in response to the COVID-19 virus, I wanted to update you on how the Melanoma Research Foundation (MRF) will ensure our work continues with as little disruption as possible. I also wanted to share some patient and caregiver resources you may find helpful. We want to encourage the melanoma community to stay involved, remain engaged and help us continue to move towards a cure for melanoma.
Following the recommendations of local and national health authorities, the MRF team is currently working remotely. However, operations have continued without interruption and our community can expect the same support resources, educational information and advocacy opportunities as before – with new resources on the way!
What you can do now:
Even as we practice social distancing, there are still many ways to get involved, stay connected and access the resources you may find helpful in the coming days.
Patient and Caregiver Support Resources:
- Find daily updates on coronavirus precautions and special considerations for people with cancer or other underlying health conditions from our partners at the American Society of Clinical Oncology (ASCO).
- If financial resources are a concern, explore the many financial assistance programs that are available to melanoma patients and caregivers.
- Need to talk? Connect with others on the MRF Patient Forum, speak with professional counselors at the Cancer Support Community or find one-on-one support with Imerman Angels. If you have a specific, medically based question about a melanoma diagnosis or treatment, email the MRF’s Ask a Nurse program at [email protected]. This resource is available 24/7, and you can expect a personalized response in 72 hours or less.
- The MRF Education Institute is where up-to-date webinars, courses and recordings on melanoma prevention, diagnosis and treatment can be found. Educational materials can also be downloaded and shared electronically to ensure you always have access to the information you need.
- View over a dozen on-demand webinars on topics including treatment side effects, genetic mutations and genomic testing, melanoma brain metastases and more. View animated patient videos, take an online course or even become a Certified Melanoma Educator.
- Take action! Laws and policies that affect the melanoma community are currently being debated everywhere from city councils to the halls of Congress. The MRF recently joined a coalition of hundreds of national partners as co-signers on seven letters of support calling for greater action by multiple government agencies. Follow some of the current legislation we’re tracking and contact your lawmakers to urge their support.
- Host a CommUNITY Fundraiser to increase awareness and raise life-saving funds. Get creative and host an online experience or share your story as a Facebook Fundraiser. The MRF can also provide toolkits and checklists to start planning now for an in-person event later this year. Need some inspiration? Check out 9-year-old Bryson’s penny drive or hit the trails with stage 4 melanoma survivor Fred as he races to fund a cure with Team Melanoma.
What comes next?
The entire MRF team continues to closely monitor the evolving situation and we will follow the recommendations of public health officials to best protect the health of our community and the general public. If further schedule adjustments or adaptations become necessary, we will share that information immediately. The safety and well-being of our community, staff, partners and volunteers will always be of the utmost importance.
While daily life may look significantly different in the days ahead, together we will navigate our way back to “normal.” At the MRF, we are inspired daily by the strength of this community and the ways that you find to support one another.
Please continue to take care of yourselves and your loved ones, and don’t hesitate to reach out if the MRF can be of any assistance.
Kyleigh LiPira, MBA
CEO, Melanoma Research Foundation
Content last updated: February 10, 2021