I have had two rounds of the combo and the third is next week. I have a brain MRI the next week with follow up with my original neurosurgeon. I usually have 6 months and this is 3 mo. He has talked to my oncologist quite a lot. They originally started with a surgery plan but when they found the lung Mets they switched to drugs first.
I’ve been tired but that is really it. None of the horrible side effects that are talked about. I expected to look like an albino giraffe with no bowel by this point. I read several times that a stronger reaction to the combo was positive. And now I am freaking out that I am tolerating it so well. Is it just to soon to judge?
Still no symptoms from the Mets. I have had increased unpleasant sensation from the severe nerve damage but no other neurological symptoms. I had radiation to the original tumor radiatiated about 8 months ago and 3 months ago they said it was stable.
I have very very minor issues but I don’t think any are related. Like I have a tiny bit of what looks like seasonal excema that I get ever winter because I forget to moisturize. Or I have three circular dots that look like mild ringworm that I’ve picked from husbands towel before. Mild cold symptoms with my 10 up has been home and sick.