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Posted By
12/5/2018 12:32pm
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After a few rounds of Ipi / Nivo I was taken off treatment due to adverse side effects and moved to watch and wait as I had a partial response on the first follow up scans. And the docs think this is likely to continue.

About a year ago during a neck ultrasound for an enlarged lymph node that turned out OK, they found a thyroid nodule that was suspicious for thyroid cancer.  I had FNA’s and a Thallium test that suggested it was benign but then it gre a bit so the plan was to remove.  Due to the melanoma this was delayed until a few weeks ago when I had half my thyroid removed.  Results today showed a benign nodule but containing both a 3mm and 1mm spit of melanoma.  This was totally unexpected and I now have to wait til the 18th to see the oncology team after my next set of scans next week.

I was pretty confident about these scans before as the mass in my arm feels either stable or a little smaller, but not quite so sure now!!

lkb - (12/7/2018 - 8:42pm)

Long waits are a big suck! I didn't know a nodule could contain melanoma without being melanoma. I sure hope your arm mass has shrunk and that the onc team will have a good plan for dealing with the "spits".

October 2017 primary scalp WLE; SLNB; partial neck dissection (PND). July 2018 recurrence in neck. August 2018 second PND. September 2018 started Nivo. December 2018 SRS for brain met.