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Trial Combo Has Invaded The Enemy

Trial Combo Has Invaded The Enemy

Posted By
MelanomaMike
10/10/2019 12:52am
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Replies: 49

Hi Family, yesterday went smooth, tons of bloodwork EKG's, and regular vitals ALL FREAKIN day, i started the meds at about 10am, took the Epacadostat (pills 400mg, one is 100mg the other is 300mg ill take that twice a day) then right after, they set the drip box to began my IV (only 1hr thank God) and the INCMGA00012 flowed thru my body without any toxicity reactions or vital set backs, i was there from 7am to 4pm, heavy monitoring, my team is just the best! Both coordinators Roland and Nan, Nan & i hit it off right off the bat were both Irish, she 100% im 50% (Mom) and both extreme feline lovers and animal welfare advocate soldiers! Then theres the Prophet Of Melanoma Warfare, Dr. Hamid! And let me tell you, besides his heavy knowledge of Cancer, he is so FUNNY! theres a side of him you will not see in his conference/interview videos!! ....I have some good news guys! My tumor on my left side (stomach under ribs) biopsy shows its NECROTIC! Dead freakin Mel cells! (No sign of Mel!!) My last bag of Opdivo was June 23rd, and this goes to show what we already knew and have said, Immunal therapies can continue working its biological magic months & months after stoppage....A "Quality of life" surgery may be performed to cut the rest out, its still painfill!(thank you for my GFMe money cuz thats not covered!) Plus im gettin a a kickass "Port" put in! Its under the skin!! Iv never seen one like it!! Oh! And as far as my recent CT scan not showing my already confirmed Mel Tumor in my Sigmoid (intestine) CT' s are not always reliable, one day its there, next scan its not! Were keepin a watchful eye though, what if the Opdivo is working there to! I still know "somethings" there, ill spare you the graphics!..Haha, its like ive only been in Hamids hands for a month and the crap is disappearing! And NOT by my trial meds either! (Not yet anyways!)....im feeling run down, a little more then Pembro, Ipi & Nivo plus my stomach is a bit in a knot, not diahrea, just a mild pain, a bit dizzy, not all the time, comes & goes, so far so good guys, i think im doing the next BIG thing for future treatment for my MRF Peeps!... love ya all, ill write later...im so hopeful now...

Melanoma Will Not Beat Me or my MRF Family! www.wespark.org www.covvha.net

I wish I could just post a "heart" emoji.

--Fellow Californian, but up here in the north -- waiting for a power shutoff.

Stage 1A excised, keeping an eye on another; multiple dyslpastic nevi.

NorCal sister! I actually forgot you to are a fellow Californian! So is HappyGal (bless her heart) shes up in the Sac area i believe in Folsom...ya, stupid PG&E are protecting their butts, fires arnt always arson come to find out! Its BS their planning a stoppage of your electricity, California is apparently the 3rd largest economy in the WORLD and yet we cant get it together! Highest gas prices in the nation to! But i digress haha....im truelly happy with my new oncology team, its nite & day compared to Kaiser...even the facility looks like an Art Museum!

Melanoma Will Not Beat Me or my MRF Family!
www.wespark.org
www.covvha.net

Really wonderful new Mike.

Thank you Judi!

Melanoma Will Not Beat Me or my MRF Family!
www.wespark.org
www.covvha.net

Really great news Mike, so glad to hear it!

Rond

So very happy for you Mike. Wishing you all the best!
Rosa

All things are possible through God!

Sister Rosa! Thank you! Im blessed for sure...

Melanoma Will Not Beat Me or my MRF Family!
www.wespark.org
www.covvha.net

Mike;
Great news about that nasty monster in your stomach! Now, on to conquer the rest of that beast in your body. So happy that you are feeling good about the battle.
You have an awful lot of supporters, I even have my wife following your story now. Keep on keepin on buddy.
God Bless,
Ted

Ted Tellman

Stage IV initial, NIVO February-June 2018 stopped because of colitis. WLE in Feb 2018, NED after surgery and recent scans. Treatment at Regions, St. Paul, MN, Dr. Dudek

Thank you Ted! I feel honored you enlightened your wife about me! Haha, im just a simple man with a complexed issue with Melanoma! My hobbies are woodworking, short walks (bad Aorta) and fighting Melanoma! Pretty simple haha...love ya brother....

Melanoma Will Not Beat Me or my MRF Family!
www.wespark.org
www.covvha.net

Great news! Thanks for the update and keep kicking ass!

Thank you brother! Im in a waaaaay better place both Mentally and Clinically now! That light id see at the end of the tunnel turns out NOT to be the front if oncoming train after all! It was Dr. Hamid with his flash light....love ya man...

Melanoma Will Not Beat Me or my MRF Family!
www.wespark.org
www.covvha.net

Excellent, Mike! May the tumor disappearing act continue and side effects be minimal!!! You are rocking this! c

Buuuuuuuuubles! I know right?! Gettin that recent biopsy report back to show its Necrotic was AMAZING! Immunal Therapy wasnt a total waste for "ME" it did perform bitter/sweet at best for "me" (thats ME folks, so dont be discouraged if yer reading this and are thinking about trying immunal drugs! Their all AEWSOME with proven data!! My Melanoma is just stubborn thats all!) Thanks Celeste, you have NO idea how fond i am of you....

Melanoma Will Not Beat Me or my MRF Family!
www.wespark.org
www.covvha.net

This is bringing tears to my eyes. I am so excited for you!

Sister Mandy! Aaaaw! Dont get me started to! My wife & i had a short cry (atleast i did) over all this, i played a dear song called " 3 Libras" by "A Perfect Circle" didnt know it would effect us the way it did, very pretty, deep song, i love music Mandy, it has gotten me through all my toughest times, all my infusions and while i woodwork....it felt good to get some crammed in emotions out, Melanoma sucks, since 2008? It goes on & on & on & on ya know? Im tired.. love ya sis..i pray every nite for my you & my Mel Peeps...

Melanoma Will Not Beat Me or my MRF Family!
www.wespark.org
www.covvha.net

TERRIFIC news, Mike! So happy to hear this.
rest easy - bethl

Bethl! Tjank you soo soo much, im glad i got my butt back in the chair at the Juice Bar, ive been away for to long! June 23rd was my last drop of Opdivo before i was halted at Kaiser, so, feels trippy doing a trial though! I feel like a Guinea pig! Love ya sis!

Melanoma Will Not Beat Me or my MRF Family!
www.wespark.org
www.covvha.net

Wish we had some emoji’s here , you are a true warrior and your positivity gives strength to me. I wish you all the best. I am glad opdivo is still kicking it.
Good luck. Lots of prayers

Sister SKS! Thank you so! I cant believe that biopsy came back the way it did, i was NOT expecting that! 80% of scans, biopsys i do ALL follow with rotten news so, it was nice to catch a break! Love ya lots and hope your mother inlaw (mother inlaw right??!!) Is back doing her immunal juice!!??

Melanoma Will Not Beat Me or my MRF Family!
www.wespark.org
www.covvha.net

Yes Sir! Keep it up Mike! How often are your infusions at Angeles?

Best, Paul

Brother Paul! Yep, im very happy with my new team, their all freakin awesome, nite & day from Kaiser! I mean, my primary oncoligist Dr. Pakanati at Kaiser was a great lady, she threw what she could at my Mel but, its not her fault it didnt work the way it should have....im a every 28 day infuse, my next one is Nov 5th, then Dec 3rd then Dec 30th but ill be going inbetween those infusions for biopsys, scans and a few Epacadostat observations, i wont take my Epacadostat pills that morning and take em there so they can do bloodwork and observation for 4hrs, i actually do that next week the 15th 9am...these trials keep ya busy! Daaaamn! But whatever it takes right?

Melanoma Will Not Beat Me or my MRF Family!
www.wespark.org
www.covvha.net

:)

Sharon

Thank you Shar! Im blessed, truelly blessed and you all (including my wife) got me there to Dr. Hamid! That idiot at Kaiser Riverside was a joke, non sensitive, behind the times and my BIGGEST BEEF was he Lied to me by saying there wasnt any Clinical Trials for me! But, im in good hands now, and im "in" a clinical trial as we type!

Melanoma Will Not Beat Me or my MRF Family!
www.wespark.org
www.covvha.net

Super news! Glad you hit it off with the new team. Helps to feel like you're more than just a test result or scan. Keep the good news coming!
Ann

Thank you Ann! I dont geel like a "number" like you brushed on, i feel human or somewhat human, im still recovering from Kaiser haha...Kaiser wasnt that bad, hell! I was diagnosed in 2008 and im STILL HERE! And i was at stage 3b at diagnosis! Cant complain to much but, these folks at The Angeles Clinic are pure medical professionals! Im in good hands now, its them who will carry the ball the extra distances.....

Melanoma Will Not Beat Me or my MRF Family!
www.wespark.org
www.covvha.net

Thanks Michelle! I am blessed like ive said, i feel like theres Hope now! I could only wish and hope you all are in the Same care, i almost feel bad like "I" have the best care in the world and everyone else doesnt, but i know that cant be true, alot of you have wonderful, caring oncologist....

Melanoma Will Not Beat Me or my MRF Family!
www.wespark.org
www.covvha.net

I'm so glad to read that the news is good and your hope is restored - that's a huge part of healing and conquering, right?! We're all here sending healing vibes and thoughtful prayers. Keep up the fight and hope any side effects remain at a minimum.
laurie

Hell ya sis! Before i was always up in the air about my treatment, all 3 meds, Pembro, Ipi and Nivo was all bitter sweet in its effort to kill my Melanoma but now i think i might be into something groovy! :) i really hope it works and it can get FDA approved to you guys who arnt having such a good time in your own fights with the Mel Monster!

Melanoma Will Not Beat Me or my MRF Family!
www.wespark.org
www.covvha.net

Great Mike, you and the triple attack will beath this damn motherf^&&$ Melanoma !!!!

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