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Starting a new treatment

Starting a new treatment

Posted By
Summer S.
10/10/2019 10:19am
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Replies: 8

Hey Everybody,

Hope you are all doing well and staying strong!

After exactly 10 months of paper work, we finally received the famous combo treatment Tafinlar/Mek. It arrived just in time as we have just witnessed a major progression on Zelboraf. I know that sounds a lot like 2012 for you guys, but this is as fashionable as it gets for Melanoma treatments where we live.

So mama is starting with the new combo next Tuesday, and also doing couple of radiotherapy sessions to hopefully conquer the newly developed Mets in the bone.

I know many of you have been through this combo, so experiences, tips and tricks, motivation will be awesome!

I love you,
S.

Christiane29 - (10/10/2019 - 3:16pm)

Hello Summer,

I'm on this combo since April. From time to time I have some fevers one day in a month), a little bit of daily fatigue but not too much. All in all iam tolerating the side effects very well.

I hope this helps.

Best wishes for you and may the treatment work for your mum. :)

Summer S. - (10/10/2019 - 3:29pm)

Hello Christine

Am so happy to hear it is working well for you and side effects are tolerable, I hope it keeps working and does miracles for you.

Love,
S.

Summer S. - (10/10/2019 - 3:33pm)

And yes it really helps, sharing stories helps me with getting some idea of what to expect. Thaaanks!

sks2019 - (10/10/2019 - 4:37pm)

Good luck for the new combo and Hopefully this kicks it all out. Which part of the world are you from ?

Summer S. - (10/10/2019 - 4:49pm)

Thanks dear,

Africa, melanoma is super rare here!

Summer S. - (10/10/2019 - 4:51pm)

I am also following your mom’s journey with iPi and wishing you all the best/ sending thoughts and love, please keep us updated :)

obtu.bt - (10/11/2019 - 2:19pm)

Hi I am on taf mek combo for 3 months only and tumors are shrinked about 7 times. Side effects are manage able I had fever in first 6 weeks then finlshed. Currently I just have less energy then before but still working full time and playing with my 2 daughters every night. I wish you all the best in this fight

Summer S. - (10/11/2019 - 8:24pm)

That is great news!
I am so happy it is working all so well for you, and I hope it wipes all your melanoma away

Thanks for sharing your experience with me, let’s stay strong