My husband was diagnosed with stage IV and he has active Crohn's. The doctors say that the good news is even thou he has two tumors in his thigh, they are not on the bone and they have not found any other tumors on any other part of his body. They say this is good news because it's not on any bones or organs. He started Stelara last week and will starts immunothereapy very soon. After the Stelara infusion his thigh started to hurt. he says it feels like the bone hurts and now he fears the tumor is on the bone or causing pressure on the bone. He didn't have any pain before and now he can brely walk. Since he's a vetran, we're going thru the VA and no one is giving him a straight answer on what to expect or do. he goes for another MRI next week and will see the oncologist as well to discuss the immunotherapy.
has any one else had this happen? What is his survival rate?