Annual scans in January showed that I'm still NED after 10 years. Diagnosed at Stage IV in Aug 2005, surgeries, radiation, IL-2, and two trials - the last being IPI 10mg/kg compassionate use trial - led me to NED in Jan 2009. 2 addt'l years of treating side effects - heavy steriods for 18 mos plus other stuff during a time when my husband was also diagnosed with cancer (2010 - Kidney - he's NED too).
Still here, working full time, praying and trying to not take precious life for granted.
Stay strong - all of you in the fight and/or the caregivers out there!
Hang in there!