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Stage IV - DX in 2005, NED since 2009

Stage IV - DX in 2005, NED since 2009

Posted By
2/8/2019 3:38pm
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Replies: 8

Annual scans in January showed that I'm still NED after 10 years.  Diagnosed at Stage IV in Aug 2005, surgeries, radiation, IL-2, and two trials - the last being IPI 10mg/kg compassionate use trial - led me to NED in Jan 2009.  2 addt'l years of treating side effects - heavy steriods for 18 mos plus other stuff during a time when my husband was also diagnosed with cancer (2010 - Kidney - he's NED too). 

Still here, working full time, praying and trying to not take precious life for granted.

Stay strong - all of you in the fight and/or the caregivers out there! 

Hang in there!



Luke 1:37

Inspiring news for us all

Tony -  IV - Ipi/Nivo (Yervoy/Opdivo); now on Nivo maintenance

Hooray, Rocco!  Thanks for the boost.

October 2017 primary scalp WLE; SLNB; partial neck dissection (PND). July 2018 recurrence in neck. August 2018 second PND. September 2018 started Nivo. December 2018 SRS for brain met January 2019 Pisces trial IL-12 + Pembro. .



You are truly an inspiration. Thank you for posting this.

Great to know!! Thank you for posting your news and congratulations and best wishes to both of you!! :)


Congrats & so happy for both you and your husband! I am especially interested in your success as I am also an ipi 10 mg responder - NED since Nov 2012. 

Everyday is indeed a blessing!!


Nice to meet you, Tom. I'm so glad to hear that it worked for you as well! Stay well!

Luke 1:37

Rock on Rocco!  I'm so glad you came through the treatments and are here living life to the fullest!

Jackie <3

Congrats!  May all side effects and cancers stay gone!!!!  Thanks for sharing! Celeste