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stage 3 melanoma diagnosis

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stage 3 melanoma diagnosis

Posted By
Anonymous
7/19/2020 8:47am
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Replies: 6

My husband is a newly diagnosised melanoma patient.. This is so very scary and I am having a hard time with this.. our lives have changed and i feel lost at times.. the cancer has spread to two lymph nodes which they removed.. he had his first of 12 treatments of Nivolumb. Im trying to be positive an strong for him . but my mind is constantly thinking of all the what ifs... just looking for support through these difficult ahead for us.. remaining hopeful but still so scared... are there any other newly diagnosised stage 3 melanoma people out there? my husband has a positive attitude but he really doesnt want me to talk to about it or ask too many questions..

caman - (7/19/2020 - 1:18pm)

Hi, well feel blessed you took care of it right away. I was stage 2 not knowing I was actually stage 3 until two years later, and I'm lucky it still hasn't spread. I've been very fortunate so far. Just regional, not distant. Immunotherapy is probably in the top 3 medicinal breakthroughs in the past 3 decades, if not number one. In your case I would recommend getting a Tempus Study done on the cancer. Gives you a wealth of information you and your doctor need to know. Expect him to be extra tired while on the Medication. I wish him well.

tkoss - (7/20/2020 - 12:22pm)

diaggnosed 3c last fall, i had 4 LN roemved and have been on nivo twice a moth for 6 month of 12. 240 mg.

i have had no symptoms and no side-effects I. had my first CT scan and no recurrence in LN's. I. had a another mole biopsied and is was non-cancerous

its hard to figure out i even have cancer. the only reality check there is when i visit the infusion clinic or get a statement from the insurance reminding me how much they are spending on me.
Discussion of survival rates are from statistical results and have little to do with the individual . i have no reason to think i won't live dozens more years. I am 64.

Although the info is not conclusive , I am much more worried about effect of Covid combined with immunotherapy. So i am abundantly cautious about contracting covid.

Very likely your husband will have a very good outcome.

SABKLYN - (7/20/2020 - 5:14pm)

Hi Anon,
Worst time is right after diagnosis. As you might know, Stage 3 melanoma covers a pretty wide range of disease. Do you have a more precise description of his diagnosis? I am not recent, but in 2011 I was diagnosed Stage 3A with two involved lymph nodes. I had a CLND to remove the remaining lymph nodes in that basin and have been NED since. I did participate in a clinical trial since at the time, adjuvant therapies were far more limited. Plenty of people on this great board who have had stage 3 disease for extended periods. I'm sure others will respond as well.

Regards,

SA

Mark_DC - (7/20/2020 - 8:21pm)

Dear Anon

I agree with the other posters (who are regulars here!) except I dont know what a Tempus Study is so not sure I would use it.
Right after diagnosis is the worst time - you are recovering from surgery (I was on crutches hopelessly with a plastic surgery skin graft that took forever to heal ahd looked disgusting too!) and then blindsided with this diagnosis and all the uncertainties. And you read all the bad prognoses and many sad stories.

Most important advice is to make sure your husband is seeing a melanoma specialist. And, if you can, to support him while not asking too many questions (if he does not want). I am not sure why he is on treatment if all removed - I guess this is adjuvant treatment to prevent a recurrence (this option only became available a year or two ago). If that is the case, then its a good sign - it shows he is making efforts, that you are probably already seeing a specialis, he will have regular scans and so he should be on top of this.

He might find this board useful. There are many excellent people here who will try to help out. But if he is being seen by a specialist and has no evidence of disease and is on adjuvant nivo, then he does not have to come to this board either. It can be good to know you are doing the best option and then just to try to make it work. Only come here to help others or if there are difficulties.

Good luck to both of you
Mark

Hi Mark tempus is like foundation one gene test. Not sure if FDA has given approval yet, here is a link. https://medcitynews.com/2018/09/110m-fundraise-tempus-app/?utm_campaign=...

texasgirl - (7/21/2020 - 9:46pm)

Hugs to you and I know how scary this is. My mom was diagnosed stage IV 2 years ago. She's been on Opdivo 2 years and most/all of her tumors have disappeared. On top of that she's been lucky to have no side effects. I hope your husband is as lucky! Prayers for you both!