Well my stable status was short lived and frankly probably never even existed in the first place, they just weren't looking in the right place.
After I had another spinal compression fracture, they told me there wasn't anything they could do that any further surgery to my spine would probably make me worse or paralyzed. Well pain just kept getting worse and I ended up with a trip to the ER for stomach issues and they found a small spot that looked like progression on the CT so my Oncologist decided to order a full PET scan which I had yet to have at this time. We had only relied on CT and MRI up to this point.
Well the results came in and my disease has progressed to my lower spine and hip bone which is what is causing my tremendous pain in the sciatic area. It also lit up in my shoulder which I was afraid of but had just told myself that I had injured my rotator cuff and was just going on with my day but nope there is Melanoma in the bones of the shoulder.
So, more radiation. Here we come. I had really good luck the first time so we are going to give it a try in these spots since they weren't treated before. So they were able to get my sim done the next day so I'm hoping they send me my schedule for treatment today so we don't waste anytime. I'm ready for some pain relief.
I went from a fairly pain free lifestyle that included me walking with a cane sometimes and sometimes I could even walk unassisted and now within about a week's time, I'm unable to walk without a walker and even that is so painful that I can only go short distances before needing my wheelchair. I forgot how much it can hurt/suck when your really sick.
Once radiation is complete (2-3 weeks), they are switching me to Yervoy(ipi)/Opdivo. I've seen a lot of people having great success with this combo so I'm hoping it's my magic bullet. Pembro seems to work the same for everyone. If it doesn't get it within a year then it's not gonna get it and it's time to move to something else.