Just posting this to add to the knowledge bank - in case anyone else is ever searching for info on this topic:
My sister, Leisa, had two skull lesions discovered last fall, after 2 years of being NED. One is located on the inside of her forehead, right frontal lobe area; the other is in the back of the skull and is in an area that is totally inoperable. The first was discovered with a regularly scheduled MRI, the second was found with followup scans that included a bone scan, CT of just the head and repeated MRI. A treating neurosurgeon wanted all scans repeated and then a PET scan done pending a plan to remove the lesion from her forehead (like a WLE but in bone). BUT - great news - after all scans were repeated (no PET), images are showing that both of them have decreased in size by half - yayyy!!!! So, plan now is just to watch and see what they do. They've never really acted like mets - they could actually just be cysts on the bone but of course, with her history, they are suspect. For now, we're happy with this!!!!!
Wishing great things for everyone here!!