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Rough day

Rough day

Posted By
11/5/2019 8:52pm
Replies: 2

So after 3 doses of ipi/nivo and continuous uti my mom started abdominal pain that would last for an hour and go away. Took her to ER
Ct scan revealed more lesions-on her liver. In her August pet she had two lesions and started with combo in September, so now with multiple lesions right next to her original two which now have grown from 1 cm to 4 cm , I am devastated ipi/nivo was my hope and I am afraid this is not working. Her next Pet is scheduled for December , should I ask the onc to review the plan as this might not be working at all ? She has one more round to go. She didn’t read her CT report yet and was hoping the lesions Would ha e disappeared.

sks2019 - (11/6/2019 - 12:21am)

Sorry didn’t wanted to post as anonymous

Bubbles - (11/6/2019 - 8:35am)

Obviously, the hope is that lesions clear and no new ones appear ASAP in melanoma world! I am sorry that is not yet happening for your mom. However, if you take a look at the graph in this link:

You will see that the average time to response it three months and there are even those who do not demonstrate a response until 6-10 months out!!!

Wishing you and your mom my best. Celeste