I have news! The hilar thing is benign funk. No Mel, no Larry! But in the process of doing all the CT scans for the Hilar thing, we found a new lesion on my spine (T10). So I've been at the hospital all day today doing the prep work for radiation. Yes, we'll zap this sucker 5 times. and it will be done with. I figure this is a good trade-off -- treating the hilar thing would have been messy. Now we'll just keep watching it.
On another note, I'm getting more and more tumors popping up on my arm. Some are good sized (bigger than a grape) but most are small (pea-sized) but I"ve just about lost count of them. RS Doc says we have come to the end of chasing them with surgery. There are just too many. So we need a Mel plan that won't interfere with the Larry plan. We were talking Pembro or maybe the combo treatment. I was a partial responder when I first had ippi and pembro and I know that there's evidence that rechallenging Mel with Ippi and/or Pembro isn't a bad thing. We're just not sure what it's going to do to the Larry gameplan. Ippi and Pembro and a TKI Chemo? I'm also Braf + and maybe that will do the trick, but no matter what I have a feeling I"m going to be my own clinical study (N=1). We'll have to give it a cool name. So I've really digressed.
So this is where it's at. It's always good to see how my MPIP Peeps are doing!
Wishing you peace, SHalom!
Julie in SoCal
Stage 3c (TXN2cM0)-- 2008 WLE, SNB, LND, HD-INF, GM-CSF, SubqQ2013 IPI, SubQ 2014 PEMBRO, SubQ 2017 resected; Feb 2019 SubQ T-VEC
Stage 3a 2017 NSC VATs; Carboplatin & Pemextred; radiation