Ok mel kicking friends, It's not official yet, (only the Rock Star can officially pronounce funk and barnacles melanoma, and I haven't seen him yet), but I'm 100% positive Mel's back in the form of two smallish bb sized blobs by my elbow.
It's been just 6 months since the last recurrence (same place). so my questions is do I keep playing whack a mole and go with surgery again? Surgery was a good answer when I needed to focus on knees. But then did I just punt the problem down the road and so now I'm dealing with the inevitable? Knees are good though...
So far all of these critters have been in fairly accessible places (under left elbow and arm). So surgery is fairly easy and straight forward (essentially 2 WLE!s) but surgery doesn't do anything to stop the critters the cells that are already there (presuming there are still some mel cells running around) from traveling out of my arm and growing into something more nefarious. Again this is assuming that there are more mel cells running around but this seems like a reasonable assumption.Playing whack a mole with this doesn't feel like a good option. But maybe it's the best not good option?
I've been looking at clinical trials but most of them have Ipi or pembro, and the RS Doc and I want to avoid these due to the toll they take on my joints. Has anyone tried ILP? It doesn't sound fun, but then what is?
Just talking out loud there friends. Open to all options!
Thank you and peace to you in this wonderful holiday season!
Stage 3c (TXN2cM0)-- 2008 WLE, SNB, LND, HD-INF, GM-CSF, SubqQ2013 IPI, SubQ 2014 PEMBRO, SubQ 2017 resected; Feb 2019 SubQ T-VEC
Stage 3a 2017 NSC VATs; Carboplatin & Pemextred; radiation