This is my first time posting, although I’ve been reading posts for some time.
Quick background. I have stage 3c nodular melanoma which was diagnosed last summer. I found out last September after WLE that the cancer had spread to one of two lymph nodes under my arm which made me stage 3 instead of stage 2 like they thought before. I was offered interferon as Nivolumab isn’t offered to stage 3 patients in Canada yet. I declined as I was told it wasn’t very effective. I wanted to go for Nivolumab anyway even though we would have to fundraise to pay $180,000 out of pocket. We applied for compassionate funding to Bristol Myers Dquibbs, being told they would maybe pay for half if anything, but thanks to prayers of many people and some pressure from some people in government we know, they gave me the entire treatment for free! So amazing.
Anyway, I’ve been on treatment since end of October. I’ve been tolerating it well, except that I got hyperthyroidism a month or two back. I was told that was a good thing as it means the medicine could be working? But just today I got a call saying I now have hypothyroidism and my numbers are extremely low. Does this reverse mean the medicine is no longer working? I’m a little worried. I’m extremely glad to be stage 3 and not stage 4, but without tumours to shrink, I don’t really have any other way of knowing if this medicine is working. Any insight? Thanks so much!