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question about recurrence

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question about recurrence

Posted By
vp sf
3/5/2020 9:18pm
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Replies: 7

My husband was diagnosed stage 4 in early 2018. Started on nivo, and was NED by his first 3 month scan, He completed one full year of Nivo post NED, and then with his doctor's concurrence, stopped treatment. Still NED December 2019, but now scans show new lesions in abdomen and lung. My question is about recurrence: Anybody have experience with a situation like this? Or relevant data? He will resume Nivo and we will hope for repeat of great results. But would love to hear from others about their experiences or what they may know or have read on recurrence. Grateful--again--to have this group to turn to.

victoria

I came across these two articles this morning, second one is recent from Dr. Davies of MD Anderson. https://ascopubs.org/doi/full/10.1200/JCO.19.01464 https://ascopubs.org/doi/full/10.1200/JCO.20.00136

vp sf - (3/6/2020 - 11:54am)

Celeste and Ed, thank you both for the helpful information. Also read Celeste's 6-27-19 blog post. Good to have the data, even if the conclusion isn't what you'd want to hear. And data is just that; it's not the story of a life. Again, want to say how grateful I am to have you and this resource to turn to.

victoria

Bubbles - (3/6/2020 - 8:55am)

Sorry for what you and your husband are dealing with. Here is a recent report, with more links within, that may interest you: https://chaoticallypreciselifeloveandmelanoma.blogspot.com/2020/02/respo...

Wishing you both my best. Celeste

STL Mike - (3/7/2020 - 5:52pm)

Same thing happened to me, After 1 year Nivo was NED so went off treatment. Next scan re occurrence in lower left lung. Back on Nivo for more treatment After about another year I went off and have been NED since Dec 2017 .

Doc told me sometimes the nasties are just too small to pick up with the CT scan.

Hang in there

Mike

Dum vivimus, vivamus

STL Mike - (3/7/2020 - 6:06pm)

Forgot yo say I did the Ipi/Nivo combo for 1st 12 weeks ( 4 treatments )

Dum vivimus, vivamus

vp sf - (3/8/2020 - 11:35pm)

Thank you Mike. Happy that you are doing well and I’ll keep your good experience in mind.

victoria