After talking with the Brain Trust at St. John's, I have a plan! It is to 1) continue the ipi /nivo immunotherapy combo I've been on every other week and then 2) start chemo in the brain next week. The thinking is that the immunotherapy is slow, but it has worked in the past and hopefully this will keep the mets out of my lungs and other parts of my body. It can work in the brain (yes, please) but it is slow, and slow is not so good for the brain, so on Wed I'll have a port put in my head and we'll start chemo to the brain and spine. Oh and the port placement is an outpatient brain surgery (Yeeeha!)
I'm slowly wrapping my head around this, and making changes to how I'll live my life. I've put in for medical leave from my job (and I loved my job) but people and relationships are more important now.
Just wanted to catch you all up.
Stage 3c (TXN2cM0)-- 2008 WLE, SNB, LND, HD-INF, GM-CSF, SubqQ2013 IPI, SubQ 2014 PEMBRO, SubQ 2017 resected; Feb 2019 SubQ T-VEC
Stage 3a 2017 NSC VATs; Carboplatin & Pemextred; radiation