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PET results in!

PET results in!

Posted By
MelanomaMike
6/12/2019 10:49pm
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Replies: 7

Hi family, well, as my last CT scan lit up, my small intestine lit up brightly in the Jejunum area, explains my new bowel habits, watery at times and yes, you guessed it, blood. Sorry for the Graphicness of it haha...ok, so that we already knew, but now theres a Light Up in my right butt cheek! Ha! It must be deep cuz i cant feel it like half the tumors that grow on me, either the scans catch em, or i catch em!
So, that explains the mild pain iv been havin lately when i roll over at night in the fetal position! It felt just like a Bed Spring! Atleast thats what i thought, but in hine sight, we have a fabulous topper by "My Pillow" and it is thick,! Theres NO Springs gettin through to any body parts with this Topper! (Their pillows are great to! Im a paid spokesperson YA RIGHTT!)) I wish...
And, of course the tumor on my left side (Stomach) is gettin yanked out in July, that one were aware of already. Thank God thats it! This Mel Monster thinks it can go anywhere it wants! And sadly it can..well, except maybe our " Hair" haha....
Well family, thats my current standing, dont think Opdivo is gunna help anylonger, IL2? Interleukin type stuff? Thats what my Oncologist and top Mel Doctors are saying other then surgerys, shes in with docs at 2 other Kaiser locations, they also have spoke of Trials....
Talk 2 ya soon guys, Mike

Melanoma Will Not Beat Me or my MRF Family! www.wespark.org www.covvha.net

Scooby123 - (6/13/2019 - 8:44am)

Mike , try post again, sorry hun you are having rough time . I had one in small intestine last year kept having blood transfusions, could not see tumour on scans ect, was only till throwing up did another scan so it tucked away at back of colon. Took me a month to get over surgery. Thinking of you and sending hugs.
Scooby

Lynda

Hukill - (6/13/2019 - 8:49am)

I am sorry treatment isn't working for you. Funny how these drugs work so well for some and not so well for others. I love you attitude, you sound just like me. My primary was on my head and my dr wondered why it didn't go to my brain. I told him melanoma went to my brain but looked around and said "oh hell no, we ain't staying up in here, to much crazy stuff going on" and it left. I hope you find something that works.

Julie in SoCal - (6/13/2019 - 11:14am)

Oh Mike!

I'm so sorry the Mel Monster has taken up residence in your innards. When he hits the "high rent district" we know it, eh? Praying that you and your Onc and top Mel Doctors will find a way to evict the Mel Monster.

As an aside, I think Godzilla has nothing on the Mel Monster, though maybe he could try.

Praying for you, friend!
Julie

Stage 3c  (TXN2cM0)-- 2008 WLE, SNB, LND, HD-INF, GM-CSF, SubqQ2013 IPI, SubQ 2014 PEMBRO, SubQ  2017 resected; Feb 2019 SubQ T-VEC

Stage 3a 2017 NSC VATs; Carboplatin & Pemextred; radiation

guynamedbilly - (6/13/2019 - 4:41pm)

Sorry Mike that sucks. I'm getting back on IPI/Nivo myself. Just gotta keep trucking along till you find what works.

jbronicki - (6/13/2019 - 9:50pm)

Hey Mike, so sorry the results weren't as good as you and we all hoped,. Melanoma has literally become a pain in the ass (had to be said, and know that you can appreciate dark humor). You know how much we all love you here. If you come to Houston you have a home for sure.
Many many prayers.

Jackie <3

MelanomaMike - (6/14/2019 - 2:20pm)

Thank you guys for your support and much needed humor, you all and i will get through this some way shape or form, ill keep you all posted whats going on!

Melanoma Will Not Beat Me or my MRF Family!
www.wespark.org
www.covvha.net

Bubbles - (6/14/2019 - 7:49pm)

Oh, Mike! Sorry that melanoma sucks great big green hairy stinky wizard balls!!! Dang.. Melanoma needs to kiss yo ass and get OUT of it!!!! Sounds like your docs are conjuring up a good plan. Hang tough and keep us posted. Yours, celeste