Where do I begin? PETRIFIED to say the least. Twelve yrs. ago I was diagnosed with a Choroidal nevus. A melanoma in the back or my right eye. I lost 90% vision in that that eye after surgery. I've been fine. Tumor has been flat for a long time.
I went for a chest x-ray August 2020 and a lobulated mass was found in the left lung. I went to Memorial Sloan (again) for more x-rays and a biopsy. Low and behold, Melanoma showed its fangs again.
Surgery was performed and, a wedge of my lung was removed. The surgeon couldn't remove it. Not only was the mass in the center of the lung but, there were cells along the plura of the lung.
My Dr. is Dr. Postow who is just brilliant and amazing..
I've been doing immunotherapy Nivolumab/Ipilmumab. My thyroid shut down (now regulated) and my liver enzymes are off the charts. Going for blood work tomorrow then cat/pet scan(again) Tuesday.
Initially I was just getting the Nivolumab but the last scan showed a bit more growth in the melanoma so, The doc. went for a more aggressive approach.
I don't think he is going to do the last combo. of meds b/c of its effects on my liver.
I know Melanoma is resistant to chemo. He said he has some things he may want to try. This is a pretty rare form of cancer. I've always been the type to be in control... I'm so scared !!! I'm 58. Just retired this past summer.
I'm doing all I can to stay positive. I know I'm in great hands. Dr. Postow told me about this forum.
I could use all the support I could get.