Good evening -
Can anyone please help me find a doctor or who do we talk to for Mucosal Melanoma for my husband. It is a mass that was in his left nasal passage positive for melanoma and his maxillary sinus.
Just diagnosed 2 weeks ago and we HAVE to get another opinion or option. They told us here "we are going to throw this at the wall and see what happens. We are the 6th case for Mucosal Melanoma in this institutes history. WE ARE lost..... This is my soul mate and I am begging everyone to please help, We will go anywhere. do we see melanoma doctors or Radiation oncologists? We have already received 1 dose of Keytruda last week. Surgery first week they found the mass in his nose... now they want to just drill bone out of his sinus cavity and then radiation - we asked about proton therapy and no one will tell us advanced or no? They honestly don't know what to do....... This is hurting so much. Im so scared. We just found each other, got married, buried a parent, taking care of my 95 year old grandmother now and we are hit with this scary unknown rare heartwrenching news..... we thought it was a sinus infection. Im so sad. WE have had all the imaging adn need to find someone FAST to see - how do we get in? I looked up Dana Faber, U PENN has amazing oncology doctors wow, and MD Anderson. But WHO is the question and how. PLEASE HELP us - with all my heart. I need any advice you can provide and I am so happy I found this site which is actively assisting fellow friends supporting each other - you all are so amazing. I hope we can become friends! and fight this C and find our journey together.....
:) thank you