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MRF Updates!

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MRF Updates!

Posted By
Shelby - MRF
5/7/2020 9:11am
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Replies: 3

Dear MPIP Community:

I hope this note finds you well. In the midst of this very strange time, the MRF is trying to find ways to keep our community united, supported and educated. I'd like to share a few items we have in the works:

Because all of the April, May and June educational and fundraising events have been cancelled/postponed, we are offering many programs virtually. I know it's not the same as being together in-person, but I hope it provides a bit of normalcy. First, we developed the #CancerHasNoCurve Resource Center, where new educational and support resources will be posted every Monday throughout the month of May (and possibly June). These offerings will be melanoma-specific, not COVID-specific. 

COVID-19 and melanoma information can be found here, and we are planning to host a live webinar on navigating clinical trials during this time, as well as making other resources available. 

Our Miles for Melanoma run/walks are currently being offered virtually, and we would love to have you participate if you are able. 

Each Thursday during the month of May, we are hosting a Facebook Live session called "Ask a Dermatologist". You can listen in via our Facebook page

Last, but certainly not least........in the coming months, we will be updating and overhauling MPIP! This will be a big project and likely won't be implemented until the Fall, but I wanted to give you a heads up. Our hope is that the patient forum becomes easier to navigate, more user-friendly, profiles are easier to update, interactions between users (likes, hearts, virtual hugs, etc.) are implemented, those diagnosed with rare subtypes have a place to connect, and that, overall, the community grows and becomes stronger. If you have ideas, thoughts, comments or suggestions, please send them to me at education@melanoma.org

As always, please reach out if the MRF or I can be helpful to you. 

Best,

Shelby - MRF

Julie in SoCal - (5/7/2020 - 11:04am)

Thanks, Shelby!!!!!

Julie

Stage 3c  (TXN2cM0)-- 2008 WLE, SNB, LND, HD-INF, GM-CSF, SubqQ2013 IPI, SubQ 2014 PEMBRO, SubQ  2017 resected; Feb 2019 SubQ T-VEC

Stage 3a 2017 NSC VATs; Carboplatin & Pemextred; radiation

Casitas1 - (5/7/2020 - 11:30am)

Thank you. I am a rare subtype!

Best, Paul

kwb - (5/16/2020 - 12:28pm)

Thanks Shelby!