Find Support

Melanoma brain mets

The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Melanoma brain mets

Posted By
AmyM
7/24/2020 11:36am
View other posts by
Activity
Replies: 5

Hey,
I just wanted to give an update on my dad. I got great news today that we are aiming for stereotactic radiotherapy next week. I was wondering what the common side effects are? Would you usually be on steroids for a time after it? Would they usually stop targeted therapy while under going SRS?
Thanks so much for all your help,
Amy

JudiAU - (7/24/2020 - 7:32pm)

I’ve had brain radiation twice to different spots. I was very tired the first time. The second less so. Any sort of brain radiation is usually just a few times because of the delicacy of the brain tissue. When steroids are prescribed at that time, it usually prescribed to control brain swelling. I wasn’t prescribed them “just because” of radiation or whatever but have had very high doses post surgery when that was a concern. I hope never to take dexamethasone again. It makes me crazy.

lkb - (7/24/2020 - 11:37pm)

I had gamma knife for a brain met. I think my fatigue afterward might have been from the Ativan. No other side effects to my knowledge. Every patient is different, of course. For example, the medication that made Judi "crazy" brought me significant relief. Good wishes to you and your dad.

October 2017 primary scalp WLE; SLNB; partial neck dissection (PND). July 2018 recurrence in neck. August 2018 second PND. September 2018 started Nivo. December 2018 SRS for brain met January 2019 Pisces trial IL-12 + Pembro. .

 

JudiAU - (7/25/2020 - 4:03pm)

I’m sorry I was trying to make dex scarier than it should be. Even on a small dosage it is a powerful drug. But I had a medical error that cause me to take 40 mg Daily for more than six weeks after I should have already tapered down. I was indeed crazy

lkb - (7/26/2020 - 1:11am)

Oh no! That sounds miserable. I don't know what my own dosage was, but it was just one time post-surgery. I can see that your situation must have been more than difficult.

October 2017 primary scalp WLE; SLNB; partial neck dissection (PND). July 2018 recurrence in neck. August 2018 second PND. September 2018 started Nivo. December 2018 SRS for brain met January 2019 Pisces trial IL-12 + Pembro. .

 

Summer S. - (8/9/2020 - 3:36pm)

Hi Amy,

My mom had just had radiation on brain Mets couple of weeks ago, it went very well and all symptoms related to them like coordination issues and imbalance were resolved. She was on low steroids dose during the two weeks of the therapy, then it was reduced gradually. We did not see any side effects but significant hair loss.

I hope it works well for your dad too

Love,
S.