Ok joking aside. I went to see the Rock Star Doc yesterday afternoon and the news is that I have lung cancer, not melanoma, in my rib (yes, that's why it hurts), and neck lymph modes. The abnormal PET uptake in my right shoulder is from a torn rotator cuff. Seems perverse to be happy about a torn rotator cuff, but I am.
So the plan is to have Mel surgery probably next Monday to remove 2 small pieces of mel funk on my left arm. Then probably take Vizimpro, a targeted TKI chemotherapy for the lung cancer. Vizimpro is a new "third generation" TKI that targets a gene mutation that is in my lung cancer. It's relatively new (2018) but the outcome data is a tad better than the other TKIs. And I am a mutant, but then you knew that.
In talking with the Rock Star and his band, they say that it's better that it is lung cancer as I have already burned through a lot of Mel treatments and coming up with something that will work may be a little creative. I suppose this is good. I am only on my second line of LC treatment., but I have moved from stage 3 to stage 4. And from treat with curative intent to palliative intent. And the TKI chemo drug is a long haul ("continue until progression or untolerable side effect). I'm not sure I'm ready to "have the flu" for the foreseeable future.Ok I"m starting to whine now,...
Still trying to wrap my head around all of this..
Thank you, friends!
Stage 3c (TXN2cM0)-- 2008 WLE, SNB, LND, HD-INF, GM-CSF, SubqQ2013 IPI, SubQ 2014 PEMBRO, SubQ 2017 resected; Feb 2019 SubQ T-VEC
Stage 3a 2017 NSC VATs; Carboplatin & Pemextred; radiation