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Mel & Larry Update

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Mel & Larry Update

Posted By
Julie in SoCal
5/22/2020 7:09pm
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Replies: 8

Hey there, Friends!!!

Just want to give you a quick update on what's going on here.

In April I had scans that showed a bit of mixed Larry the Lung Cancer progression- some stable stuff but a new lesion on my hip and some new lymph nodes lighting up. I had radiation to the hip and continued on a targeted chemo.

Then about 3 weeks ago I started to get a very mild but insistent back/shoulder pain and a changing cough. I tried to go the pulmonologist but had to take a COVID 19 test first. It took 10 days for me to get the results. UGH! I am COVID negative, though. So, when I saw the pulmonologist yesterday, he looked at my pet scan and said I have water in my lungs and he'd like to drain it out. :-0. The plan is to have my lungs drained and a CT Scan on Wed. I'll also see the Rock Star, but at that point in time, we won't have any results from the CT or the fluid cultures. Pneumonia is sounding good right now.

On the brighter side, I'll start Julie & Sheri's Grand Adventure 2020 (Grand Tetons, Yellowstone, and Glacier NPS) in 24 days! Yes friends, in just a little over 3 weeks we'll hook Chubbs (the tiny trailer) to Subie Blue, say goodbye to the dog (she's old and a long road trip like this won't be fun for her) and hit the road! I can't wait! Can ya' tell!?! I'll post pictures when I'm back,

Thank you, friends for your love and support.

Shalom!
Julie

Stage 3c  (TXN2cM0)-- 2008 WLE, SNB, LND, HD-INF, GM-CSF, SubqQ2013 IPI, SubQ 2014 PEMBRO, SubQ  2017 resected; Feb 2019 SubQ T-VEC

Stage 3a 2017 NSC VATs; Carboplatin & Pemextred; radiation

gopher38 - (5/22/2020 - 8:44pm)

Great update. Too bad the virus test came back negative, because you could have made a claim to be the first Larry, Mel, and ... Cory (?) Covid patient on the planet. Quite a distinction.

That camping trip sounds fantastic. Pictures definitely.

Bubbles - (5/22/2020 - 8:58pm)

Oh, Julie!! So sorry that you've been feeling unwell! Glad you don't have COVID, but I don't want you to have anything else either!!! Sounds like you are on top of it and have a good plan in place. Will have all fingers and toes crossed for you on Wednesday!

I love that brighter side! Can't wait to hear all the tales and beauty that I know you will find on the J&S Grand Adventure!!! B and I took a train from Chicago to Whitefish (That was CRAZY right there!!!) and spent a wonderful week in Glacier. Such an incredible place!!! Haven't ever seen the Grand Tetons or Yellowstone, though - so I am eager for your stories and pics.

Much love and hugs, dear friend!!! Keep us posted! love, les

MelMel - (5/23/2020 - 1:06am)

It's always nice to hear from you, just wish you did not have to deal with the lung issue. It's good you are taking care of it because my mom had a collapsed lung and pneumonia and it turned out to be caused by the lung cancer, thus her cancer diagnosis.

The trip will be fantastic and being that you will spend most of the time outdoors it should be most beneficial in more ways than one. Interestingly enough, my mom visited Yellowstone and although she has travelled extensively to all corners of the globe she was most imptessed by the nature in Yellowstone. She calls it as a totally eye opening experience, after which she has a new respect for Mother Nature.
Looking forward to the pictures, until then have a wonderful and safe journey, take care and enjoy!
Melanie

tedtell1 - (5/23/2020 - 8:30am)

Hi Julie;
Great to hear from you. Glad you are covid negative, sucks that you have fluid where it's not supposed to be! Hope you get to feeling better for your wonderful adventure and you have a wonderful time. Make sure to provide us a slide show when you return.
Blessings,
Ted

Ted Tellman

Stage IV initial, NIVO February-June 2018 stopped because of colitis. WLE in Feb 2018, NED after surgery and recent scans. Treatment at Regions, St. Paul, MN, Dr. Dudek

slholmdahl - (5/23/2020 - 8:45pm)

I know you will have a wonderful trip! Hopefully next week will go well. Its good to read your update, sorry about the medical bureaucracy!

lkb - (6/1/2020 - 1:41am)

Thanks for the update! I hope there is no Curly Joe to add to Larry and Mel(ish). Fab trip coming up and I'm already excited to see your photos. Hang tough, Julie!

October 2017 primary scalp WLE; SLNB; partial neck dissection (PND). July 2018 recurrence in neck. August 2018 second PND. September 2018 started Nivo. December 2018 SRS for brain met January 2019 Pisces trial IL-12 + Pembro. .

 

Mark_DC - (6/1/2020 - 11:17pm)

Good luck Julie - should have posted earlier sorry! - hope will be good news and that you will have a great road trip
Mark

Mark_DC - (6/2/2020 - 8:09pm)

Good luck Julie - should have posted earlier sorry! - hope will be good news and that you will have a great road trip
Mark