Sorry this is a little long... I have never posted before but have found this group very helpful since my diagnosis.
I was diagnosed in January with stage 3 melanoma with unknown primary. I had a large lump under my arm which was biopsied. I then had an axillary lymph node dissection. My initial pet scan had, what my doctor called, "some minor areas" that lit up but nothing was enlarged so it could just be physiological activity and that they would be treating me as NED - adjuvant treatment of taf/mek, but I couldn't tolerate the mekinist so now I'm just on tafinlar.
Fast forward now to my 6 month scan... CT is ok but shows an "indeterminate lesson" on my liver so they recommended an MRI. Had my MRI with contrast which now shows 2 lessons on my liver - 1 "most likely a hemangioma" and the second "indeterminate". And also an indeterminate lesson on my spleen. So they are recommending PET.
In addition to the obvious reasons of worried, I'm concerned that the PET will lead to a false positive. There's nothing concerning in any of my abd/pelvis lymph nodes, so would they melanoma really skip that and go to my liver? I'm 35 years old with 2 young kids, and while I know that the worry will never completely go away, I was hoping that I could "move on" after my year of treatment.
Any similar experiences or encouraging words are welcome! Thank you all for reading.