My Oncologist just called me to share this amazing news! After the 4 combos of Ipi/Nivo and 8 months of Nivo maintenance, my stubborn liver and large adrenal mets are finally shrinking. I had an extremely heavy burden of organ and bone mets when diagnosed 1 year ago this month. I had no clue anything was wrong until the mets on my hips pinched nerves and caused partial paralysis from the waist down. I walked into the ER on January 20th 2018 in extreme pain and collapsed before I made it through Triage. Had 5 rounds of radiation to my hips and pelvis and stared the combo within a month from diagnosis. Bone mets and smaller organ mets responded quickly to treatment, but large liver tumor and adrenal tumors seem to be more stubborn.
Happy to be making this post after such a challenging year. Wishing you all similar successes in 2019!