I didn't expect 15 years later to gain so many new insights into my case. I came up CDKN2A positive and after over a year of insurance battles I'm finally getting a CT tomorrow focused on pancreas. 6mm depth Nodular 15 years ago was the highest staged primary but since then I've had several SSM's and an insitu.
I got to thinking more and asked around about slow melanoma's.
I had severe hypothyroidism found about 5 years after my first encounter with Melanoma. My TSH spiked up to 56 (not a typo ...). We got it down to range 0.9 to 2. If I don't take thyroxine my TSH creeps back up.
Has there been any research into metabolism and melanoma? The more I put the puzzle pieces together the more it becomes logical that a failing thyroid could have saved my life.
The longer time goes on and the more I reflect the thyroid issues came on around a time of severe tiredness. I was diagnosed with Narcolepsy with AHI 30 (awoken once every two minutes), I was bradycardic BPM 59, but treatments didn't work and was then correctly found to have Sleep Apnea. That will over time drive down and destroy thyroid function.
All of that is now under control ... I am left still with FAMMM and CDKN2A+ but I just wonder if metabolism can be a key factor in the survival outlook.
What's happening with my holistic medical history that's leading me to be able to tell my story of melanoma with no upstaging (so far over 15 years)?