Hey there-- new to this forum. my husband is 32 and was diagnosed 8 weeks ago with stage 4. he has spots in his brain that he underwent SRS for, and he has started immunotherapy (has completed one dose of opdivo and one dose of combo with yervoy...due for next combo treatment a week from tomorrow) for spots in his bone marrow, lymph nodes, liver and lung lining. He had a stage 1 spot removed four years ago and has been clear ever since-- we have a baby who was born the day after his diagnosis this year too... so whew, so much stress.
He is experiencing extreme fatigue, night sweats, right side dull pain, shortness of breath and cough but our docs are not too concerned for any of this at this point. Do you guys have any recommendations for how to push through, or things to ask? Anything in particular to look out for? As a nurse, its hard to be the caregiver through all of this... as im sure being a caregiver is hard for everyone but as a nurse, i fear that i know too much of what COULD be. I try not to let that fear stop me from enjoying our day to day life.
Also, about how long after initiation of immunotheraphy do you guys expect to see results?
I think they may be thinking of pulling him from immunotherapy and switching to BRAF/MEK drugs but we will see what this week brings...