In a nutshell, diagnosed 4/17, 3 treatments of Opdivo/Yervoy starting May 2016. Then stopped due to high liver numbers.
Jan 2017 to Jan 2019 every 2 weeks Opdivo infusions with Petscans every 3 months, bloodwork every 2 weeks. Newest Petscan
showed still no tumors. So Dr stopped Opdivo. He said that I am one of 3 of his patients that hit the 2 year mark NED. I also
met another patient at Kaiser with a different doctor that is also NED and treatments stopped. We were all Stage 4 Metastatic Melanoma.
So now I might be around awhile I need to start dealing with cholesterol, and normal regular life stuff. Arthritis.
Before it was "why buy new shoes, I won't be here next year to wear them?"
I would like to thank other patients for all your support and advise. Bubbles, Ed Williams, the two Jenny's and others.
I still have to take 125 of thyroid meds daily and have fatigue. A little brain fatigue. But I've had 5 brain MRI's in the 3 years, and very high doses of
Prednisone for 4 months to bring my liver numbers in balance.e before starting the opdivo maintenance.
Sharon, Simi Valley, CA
Dr. Wang, Kaiser, Woodland Hills, CA