I’m very curious about how treatment differs from state to state, and what Americans receive compared to us Northern folk :) In Canada, everything is covered by the government’s health care system, so I am beginning to wonder if that is limiting our options due to cost.
Currently patient with Stage 4, and a high tumor burden was started on Ipi/nivo as first line. 5 doses of light radiation to help with pain from bone Mets near the beginning. After getting all 4 doses, and seeing all tumors being reduced the pain got unbearable and new bone scans showed heavy progression in the bone, and he was switched to braf/mek. Responded pretty well, but still a lot of tumors. All brain mets are gone.
Now, is where I don’t understand how things differ.
I have seen stories from quite a few of you that had a similar beginning, and then got to go back on Nivo while staying on the braf/mek.
I have seen stories of people given a whole new bash of ipi/nivo after the rumor burden was reduced.
I have seen surgeries. And radiation. I have seen stories of this all combined, and I just can’t understand why it is that some patients are being given ‘’more’ treatment.
Can anyone help me?
If money were no object, what treatment plans would people be on?
Thanks in advance, again.
I can’t say enough how much I appreciate this group.