Hi all. I am still consulting with docs about going on BRAF combo meds or combo immunotherapy. I finished my radiation SRS treatment to my brain mets July 2 and July 5 stopped taking dexamethasone. I had been titering (Sp?) down from the steroid for 2 weeks due to side effects. I still had a very mild headache for about three weeks after I stopped radiation, then no headache. Today, July 30, I have a headache and was seeing auras and couldn’t read full sentences. The headache is on the same side of the brain as before. I have an appointment with my doctor early next week, and he is confident that the SRS was successful, although I have not had a follow up MRI yet as I am not scheduled for one until early September. He says I don’t need it and put me back on the dexamethasone to help with what he says is causing it, continued swelling. I am quite confused by the reappearance of symptoms. Does anyone have any thoughts or experience they can share? Thanks very much.
Diagnosed 4/18 Stage IIIc; WLE on head, started Opdivo 5/18; new spots 10/ 2018; 2nd surgery; Last Opdivo 3/19. 3 brain mets recur 6/20; now Stage IV; SRS + starting Ipi/Nivo 8/17 2020.
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