Just an update. Quick history - stage 4 with lung/liver mets. Four rounds of ipi/nivo and all tumors are shrinking! Started double dose of opdivo 2/21. Very soon after, my vision started to blur. Last week, my vision started to double and got progressively worse. Tuesday, I drove to work but there was no possible way to drive home. Went to ER at MD Anderson Wednesday where I saw an ophthalmologist who ordered another MRI to ensure no cancer growth in the optic nerve area - there wasn't any, whew! But the muscles around my eyes had increased in size 50% since my initial MRI before treatment.
They put me on a high dose steroid for the next seven days (50mg Predisone). Other than that, they recommended I buy fake glasses and scotch tape one side out to help with the double vision - it's helping (yet I keep thinking about funny it is that this woman went to BRAIN DOCTOR SCHOOL and fake glasses with scotch tape is what she prescribes) :) :) :)
Trucking along with some weird side effects! I feel like the steroids have been kicking in and my vision is slightly better. Wishing you all the best in your fights!
JenniferPrimary 1B in 2014 - WLE and SNB negative. Recurrence Dec 2019 - Stage IV with mets in liver and lungs. Currently on ipi/nivo combo @ MD Anderson (Houston, TX).