I was diagnosed 3a in January 2019 with a 1.9mm non ulcerated , Clark Level III , Mitotic rate 1 , no regression Primary on my right thigh. My 2 SLNs showed traces of melanoma cells. - no CLND .
I am being treated in Germany at one of the top skin cancer centers and I am in my 5th month of a taking BRAF- MEK Combo (Tafinlar - Mekinist)-- full dosis.
Everything fine, monthly checks are fine and so far I was rather calm, since my doctors tell me that I have a good chance of not getting a recurrence.
Due to the fact that I work in the U.S. , but travel extensively to Europe and get all medical treatments in my home country Germany, I also took the advantage to seek a second opinion on my melanoma history from a well published provider here in Minnesota.
Bottom line, he faced me with a rather grim picture, saying that BRAF - MEK only buys me time and if he were to be in my shoes, he would switch to adjuvant immunotherapy and test the primary again for PD-1L.
I looked at the latest stats of the Novartis trial and its true that both placebo and combo curves get closer to each other in year 4, but I hope I currently do more than just buying time !!!
I am very nervous now and start to mistrust the medical team in Germany. Any thoughts or ideas ,which might put a different perspective on the matter ?
Thanks. This forum really helps me to not feel alone !