I posted on here years ago about my mom's stage 3C melanoma prognosis. She had a wide excision After 4 years with some local recurrences, our world came to a crashing halt when my mom was diagnosed in the emergency room with melanoma in her brain (and likely lungs). The melanoma in her brain was advanced. 3 significant tumors and one small spot. Since then she has had 3 craniotomy's after two separate incidences of them bleeding. Although the surgeries were successful, and she does not have any apparent major neurological deficits, my mom is weak and defeated physically and emotionally. She has been struggling with stomach issues/pain due to the steroids and isn't able to stand up as she's been bed ridden for 6 weeks. We are in Canada and dealing with B.C. Cancer. Throughout the years I have continued following this forum, and have read a lot on Celeste's blog (what an amazing resource). My mom's neurosurgeon seems to know a ton about Melanoma treatment, but the oncologist and radiologist seem just ok.
The current plan is:
1) Radiation. The radiation oncologist would like to do WBRT rather than stereotactic on the 3 cavities and 1 remaining spot. He said he is willing to do both. The neurosurgeon did not like the idea of WBRT and is phoning today to ask why this is being suggested. Thoughts? We have an MRI booked for next week and then we are hoping to get her strong enough to do the mapping required to do the stereotactic radiation.
2) PET Scan which is booked for middle of December. There are 2 spots on her lungs they want to get a better look at, as well as assess the tumor burden in the rest of her body. The oncologist said then he will determine whether to use the ipi/nivo combo, single agent nivo, or BRAF drugs (My mom is BRAF positive) as the next step of treatment.
I think this all aligns with what I've read here and on Celeste's research regarding Brain Mets. But, looking for any extra insight into what I may be missing, other things I should be asking, etc. Any feedback, comments, hope, would be welcome :)