Time: 11:30am Eastern / 8:30am Pacific each day

https://go.thetruthaboutcancer.com/2019-live-event/preview-4/

Hi, My post might seem redundant but I am really struggling to understand what is going on with my mom. She had two doses of ipi/nivo so far and is experiencing headaches that comes after 9 pm and are gone by 9 am without any medicines. She now doesnt wants to be awake at night so she takes a tylenol when it starts but that just reduces the intensity of the pain and by morning she is all fine.

She also has jaw aches and unable to chew food properly. I have been searching all over to see if this a combo side effect or she is having any new development in jaw or in brain.
So far i dont see any such side effect documented.

Can someone please help to answer if they have experienced such cluster headaches that last 12 hour and jaw issues ?

Bubbles ?

Thank you.

Hi Family, yesterday went smooth, tons of bloodwork EKG's, and regular vitals ALL FREAKIN day, i started the meds at about 10am, took the Epacadostat (pills 400mg, one is 100mg the other is 300mg ill take that twice a day) then right after, they set the drip box to began my IV (only 1hr thank God) and the INCMGA00012 flowed thru my body without any toxicity reactions or vital set backs, i was there from 7am to 4pm, heavy monitoring, my team is just the best! Both coordinators Roland and Nan, Nan & i hit it off right off the bat were both Irish, she 100% im 50% (Mom) and both extreme feline lovers and animal welfare advocate soldiers! Then theres the Prophet Of Melanoma Warfare, Dr. Hamid! And let me tell you, besides his heavy knowledge of Cancer, he is so FUNNY! theres a side of him you will not see in his conference/interview videos!! ....I have some good news guys! My tumor on my left side (stomach under ribs) biopsy shows its NECROTIC! Dead freakin Mel cells! (No sign of Mel!!) My last bag of Opdivo was June 23rd, and this goes to show what we already knew and have said, Immunal therapies can continue working its biological magic months & months after stoppage....A "Quality of life" surgery may be performed to cut the rest out, its still painfill!(thank you for my GFMe money cuz thats not covered!) Plus im gettin a a kickass "Port" put in! Its under the skin!! Iv never seen one like it!! Oh! And as far as my recent CT scan not showing my already confirmed Mel Tumor in my Sigmoid (intestine) CT' s are not always reliable, one day its there, next scan its not! Were keepin a watchful eye though, what if the Opdivo is working there to! I still know "somethings" there, ill spare you the graphics!..Haha, its like ive only been in Hamids hands for a month and the crap is disappearing! And NOT by my trial meds either! (Not yet anyways!)....im feeling run down, a little more then Pembro, Ipi & Nivo plus my stomach is a bit in a knot, not diahrea, just a mild pain, a bit dizzy, not all the time, comes & goes, so far so good guys, i think im doing the next BIG thing for future treatment for my MRF Peeps!... love ya all, ill write later...im so hopeful now...

do a search if interested

Hi everyone. Haven't been posting much lately, but I keep tabs on everyone, every day , as I always have. Laughing, crying, rooting you all on in your fight. I feel like I know most of you, and certainly feel your tragedy, and triumphs. And the incredible support, advice,education and love on this forum makes this a special place.
Today I got the results of a biopsy from last week. Melanoma insitu on the tragus of my left ear. That's primary number 12 for me, and the 8th insitu in a row. This lesion came on fast and looked angry. Quickly failed every aspect of the abcde rule. Its speed of evolution had me concerned pretty quick. So it's in a tricky spot for the wide excision, and my normal surgeon for wide excision is referring me out to a surgical oncologist, and plastic guy. He mentioned to me that hopefully the rest of the lesion would remain insitu since we just punched a small part of it. It covers the entire tragus. I'm thinking I'm in for the most radical wide excision of my time chasing this persistent pest.
Starting with a new team, oncologist, pcp and the new surgeons. Still pressing to rule out mets to the epidermis, but can't seem to raise any eyebrows yet. It's a long road navigating the system. Feels long
Anyone with information on what I'm likely to encounter with this round, I'm all ears. At leat at the moment, since keeping the left ear I've been told may be questionable, as well as part of my face. It's my most photogenic side too!

You're all not far from my thoughts....ever.
Aloha,
Bob

Hi, everyone.
I am very thankful for all your posts, I have learned so much about the disease and its treatment!
My mother-in-law was first diagnosed in 2009. She had radiation and though she has lost her sight partially, she has led a normal life until last january. They found mets in her stomach, liver and kidney and recently some subcutaneous lumps were considered malign as well. She had immuno (nivo, alone) from february to september. As the results were not as good as the oncologist expected, she said there was not much to be done, but they could try ipi, even though she was sure it wouldn't help. After that, the only treatment would be chemo, but she said she didn't believe it would have good results.
There are no support groups like this in Portugal, where we live, so I would love to hear your stories, advice, comments, ideas... since from what I have read here, there were/ are other options. How were you treated in similar situations?

Wishing you all luck, hope and strenght.

This looks like it should be a pretty interesting movie. No doubt about it many of us wouldn't be here if it weren't for Dr. Allison's research.

https://www.youtube.com/watch?v=KI9X1de_XsU