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Tender lumps in muscles - not cancer so what are they

Tender lumps in muscles - not cancer so what are they

Posted By
DZnDef
7/19/2017 6:46pm
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Replies: 3

Hi all, I'm hoping one or more of you might have some ideas as to what these might be.  Prior to Easter, I started noticing some tender squishy lumps in my upper arm muscles, back of my upper thighs a back of my shoulders and neck.  They were about the size of a small jelly bean and the consistency of gummy bears which is to say, squishy, not hard.  They seem to come and go (or at least the tenderness does).  I have trouble locating one unless it is tender as they tend to be fairly deep, not right under the skin like a sub q.  I brought them up to my oncologist but of course they were in hiding at that visit.  Being an oncologist, of course he has cancer in mind but I've had two sets of scans since then and these are not showing up.  I now have a few spots on my right side and belly.  More googling has brought up rheumatoid arthritis (I thought that affected joints though not muscles).  Ganglion cyst is another possibility per Google.  I mentioned lipoma and fibroma to my oncologist but he said those don't come and go.  Anyone experience something similar?  Or have some ideas?  My meds are Tafinlar, Mekenist, Keytruda, prednisone, Keppra and Nature-Throid.  I think that's it.  I also take a daily probiotic and vitamin D3.  Any input is appreciated.

Maggie - Stage IV (lung mets unknown primary) since July 2012.  Brain mets September 2016.Taf/Mek, gamma knife, Keytruda resulting in clean brain scan and tiny remnants in lung as of July 2017

Hey Maggie - check out this WebMD link (it's quite dated so there's likely more current info available out there) - a discussion concerning fibromyalgia & myofascial syndrome, with a suggestion that thyroid trouble contributed in the case of one poster:

- http://forums.webmd.com/3/fibromyalgia-exchange/forum/19035/8 -

But geez!! like you need anything else goin on right now!! Hope you and your doc can solve this!!!!

Barb

Thank you for responding with the link, Barb.  It is frustrating to realize that just because I have cancer doesn't mean I get a free pass on having other medical issues.  My oncologist seems to not believe me since I could only find one for him to feel six weeks ago and he thought it just felt like muscle tissue.  Plus, since they don't have any uptake at all and are essentially invisible on scans he is not concerned it is cancer growth so he is not concerned.  Period.  The bumps are annoying but not super painful.  I would like to know what they are in case they can be easily fixed - like by eating more spinach or something.  I was also curious if they might be a side -effect of one of my medications.  If they are auto-immune related that might be possible.  But it doesn't seem like anyone else here has had the same issue.

 

Thanks for taking the time to do some research for me.  Very sweet of you, Barb.

 

Cheers!

Maggie

Maggie - Stage IV (lung mets unknown primary) since July 2012.  Brain mets September 2016.Taf/Mek, gamma knife, Keytruda resulting in clean brain scan and tiny remnants in lung as of July 2017

No problem Maggie, research is part of what I do professionally.

I've never even heard the term myofascial syndrome before but the descripton from those posters sounded too close to ignore. And, if that is an immune system problem, then that could make sense being that mel is an immune system cancer.

BTW - I also saw your response to my post about the vacc scar - very intriguing indeed!! You have to wonder if there isn't some sort of correlation there >> although that would sure be fuel for all the vaccination haters to latch onto. Maybe in time, researchers can correlate all the extraneous bits of data patients come up with. We told the onc about it the other day and she was surprised but thought it made sense if there were microscopic remnants of the vaccine in the skin. 

Again, hope you can solve the "bump" problem!!!!

Barb :)